So sorry that I haven't been able to update much. Zach demands (not really a strong enough word) a lot of attention, so when I get a break and can get to a computer I have to take care of necessities like eating and using the facilities (neither of which we can do while in PCICU).
I just realized that I never updated that they did not move us to a room yesterday. They said he had not gotten rid of enough of the fluid in his lungs yet. We are going to be moved sometime today. They are full on the floor but discharging one, so I figure it will be later this afternoon before they have our room ready. It will not be soon enough.
So far, surgery has been a piece of cake in comparison to dealing with a 4-year-old. He so desperately needs to feel some sense of being in control but there are very few things he can control right now. We are having some episodes that I think are what they call "ICU psychosis." We need a change of scenery and a remote control for the TV that works. What more control does a male need? So, please pray for him to behave and be easier to get along with.
He has developed chylous drainage, so we are starting on a fat-free diet. I'm not even going to think about how Zach will react at not being able to eat chicken nuggets. That would be another prayer request --- that he will be satisfied with what they will allow him to eat and that his chylous drainage would resolve quickly.
Gotta run and get back to help Bill as he deals with our Little Napoleon. Thanks for checking on us!